Last night Mom came home early to enjoy the warm weather with Dad out by the pool. They sat and chatted for about 45 minutes before Dad got up to make dinner. While Dad was in the kitchen, Mom called her friend Jacque, who is also fighting CLL. Jacque faces a potentially more serious problem that her auto immune system is failing. Her doctor is trying Retuxant and Bendamustine to see if it is her CLL causing the auto immune problem. Her doctor wants to try another drug he thinks will be more helpful, but the insurance company requires the Bendamustine be tried first. On the one hand, the insurance company is trying to manage costs - these drugs costs thousands each time they are administered. On the other hand, it seems a waste that Jacque's doctor has to make her take them so she can get what her doctor believes she really needs. So Jacque is having weekly chemo infusions. Mom calls her the evening before each treatment to encourage her, and then she follows up the day of treatment to provide support for what Jacque is going through. Mom has such a big heart. I wish Mom's friends would call her before treatment and after because Mom has a rough time with just Dad and Lou and me. We do our best, but Dad and us, we are boys and boys don't help women like other women do.
Last night was warm and muggy. After dinner there was a heat lightening storm, which scares the bejeebers out of me. I got so wound up that Mom gave me a valium to calm me down so the family could sleep. The valium was prescribed for Lou because of his epilepsy, but he has never taken it since he isn't scared of anything and his new drugs do a good job of managing his seizures. I had a bit of a hangover this morning until after breakfast we walked a couple of miles which made me feel much better. Let's see what today brings!
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